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Duke Student Broadcasting: Disabled Access

Hello Duke Students!

Check out Duke Student Broadcasting’s latest video! This video specifically talks about one of our members, Paul Shaver, and what he has to go through to get around campus. This video clearly shows how we need to address these accessibility issues. It also mentions that DDA is the only student-run organization that focuses on these disability issues, and how certain events on campus do not allow fair access to those in wheelchairs because these events and parties are held in old campus doors with no accessible ramp. And because of that, students with disabilities get left out.

Please feel free to leave comments or to ask any questions regarding disability issues or how you can help out.

Best,

Cuquis Robledo

Class of 2017

President of DDA

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Documenting disABILITY

~ by Okechi Boms ’16

Disabilities are often viewed as limitations and sometimes have a stigma attached to them. Debunking these preconceptions calls for better awareness and sensitivity within and larger than the Duke community. Over the past semester, I conducted a photo-documentary project to record the experience of disability on Duke’s campus. My intent was to highlight the different experiences and perceptions of people with disabilities; the participants ranged from students to administrators. I titled the project: Documenting disABILITY.

I believe that there is a strong relationship between both the body and mind, in which one can drastically affect the well being of the other. My interest in documenting disabilities on campus stemmed from my curiosity about the resilience of the human body and mind. I wanted to create a project that transcended just completing the basic requirements for my course, for my class Documentary Studies 206: Medicine and Documentary Photography. I wanted to highlight stories from people who have gone through their own unique experiences. Also, I envisioned a project that would have the potential to benefit the community of people that would be documented. After speaking with correspondents from the Duke Disability Alliance (DDA), they were thrilled at the prospect of using the photographs for future projects.

The general structure of the project involved conducting a number of interviews and photography sessions. In addition, I interviewed students and administrators at the Student Disability Access Office (SDAO), attended the national disability conference at Duke, Beyond Disability, Beyond Compliance, and events hosted by DDA. After conducting the interviews, these are some of the lessons that really impacted me:

  • “You define yourself by what you do, and the impact you make, not on the physical appearances.” – Paul Shaver, Duke University 2017.
  • “Live life big and to the fullest… Life is not about waiting for the storm to pass, but dancing in the rain. My journey has had a lot of storms and obstacles but I never let that get to me.” – Cuquis Robledo, Duke University 2017.
  • “The definitions that other people place on those with disabilities are oftentimes, not what they place on themselves. When people come to terms with having a disability, that’s when it stops defining you.” – Cori Hayes, Duke University 2016.
  • “I try to strike a balance between, on the one hand, embracing disability and recognizing its positive contours, and on the other, fully recognizing that it’s only one small part of who I am … I feel like I can more effectively empathize with marginalized communities because of my disability. I’m a firm believer that you really need to experience and understand otherness and hardship to be a better listener, and a better thinker.” – Jay Ruckelshaus, Duke University Class of 2016.

Over the course of my project, I have become more sensitive to ways in which Duke’s campus or culture might not be inclusive for people with disabilities. The administration is working hard to create a more accessible campus; these steps will work to improve the physical space. But in order to build a better community, we need to foster conversations that address a population of the campus that is sometimes forgotten. These voices and opinions are relevant and important for creating a more diverse and enriching environment.

I took this class to better understand the power that images have in portraying stories; I can confidently say that this goal has been met. This is an experience that I will not take for granted because it has opened to me a new realm of self-expression and artistry. More importantly, I have been fortunate to meet interesting, thoughtful people who have taught me the importance of relying on a strong support system, positivity, and strength.

{the collection of pictures will be displayed later}

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Please, watch where you’re going!

- by Cuquis Robledo

We all know what happened at the Duke vs UNC football game on Thursday. We know that Duke lost, but it was also the first time in a while that Wallace Wade Stadium was packed and overcrowded to the point that people were being turned away.

Everyone has been talking about the big mosh-pit at the very beginning when people were entering in through the gates. The Duke Chronicle has reported on injuries that occurred from this chaos, but I thought it might be important to tell the story from my perspective.

Those of you who know me know that I am a Little Person and use a red motorized scooter to get around on campus. Like everyone on campus, I was excited to go to this football game since it was the last game of the season and I hadn’t been to any games this season. My friends and I arrived at the entrance to the stadium between 7-7:30 PM, and we could already see that the two “lines” to get to the get were merging into a large mass and pile. With one friend next to me and two friends in front to clear a path we slowly tried to get to make our way to the gate.

Now, driving a scooter is kind of like driving a car (but without the lights and rear view mirrors). Not only do I have to watch where I’m going, I have to make sure I don’t run into anyone. And being only 3 ft. 4.5 inches on a scooter, all I could really see was a wall/sea of black, navy and blue. In other words, it was very difficult to see where I was going.

As the gate was near in sight, there was an opening for my scooter to go in. As I was about to make that straight shot into the open space, two guys who were drunk sharply cut in front of me, almost running into mean. On top of that, they were so drunk they started leaning back and were almost going to go on top of me and push me off. Luckily, a few people who were waiting on the side tried to make the attempt to get them to move or at least watch where they were going, but I don’t think there was much luck on that.

One thing I realized too is at the gate, there is HARDLY enough room for my scooter to get in. It kept bumping on the sides because it was so narrow. I they would at least have a gate wide enough for all people with wheelchairs are scooters to get in. My friends had to shove the whole scooter in at the end.

I was able to get in eventually, but finding a seat is difficult. I am limited in terms of seating. There is either the handicapped section which is all the way at the top, but where all the street people are and away from the whole student section, or try to stand and join the student section.

While in the handicapped seating area I am able to see more, it makes me feel isolated from where all of the other students are and enjoying the whole Duke Experience. So I decided to try the student section. But of course, it was packed and finding seats where I can see was pretty much, impossible. I understand that everyone else had that trouble, but for me it is difficult because at least when everyone stands, they are able to view some patches of the field from over people’s head. I for one, was completely blocked. In addition, there was more of the pushing and shoving, and because I am so short, I am more susceptible to falling.

I know you might be thinking that, “Well, everyone has fallen at some point during the game.” But for me, falling is very crucial. And let me tell you why…

I developed scoliosis in the spine when I was about 8 years old, and when I was 11, the curve developed into a 100 degree curve. As a result, I have a metal rod down the left side of my spine, and falling down is a risk for the metal rod because there is a possibility the rod can disconnect from the spine. Also, I had leg surgery back in 2012 to lengthen my legs, and because of the surgery, I now have two metal rods in my femurs and metal screws in my knees and ankles. There is a possibility if I fall, one of these screws can shift around causing me severe pain. And lastly, because I am so small, people are likely going to forget if I am there…so if I fall, there is the fear that people will stampede on me and hurt me.

Despite these issues at the game, I did enjoy myself with my friends! I am lucky to have great friends who will stay by me and make sure that I am safe in any way. And by the 4th quarter, my friends and I were able to get front row seats since over half of the people came left by the second half. So it all worked out in the end.

The main reason I am writing this blog is to ask you to please be careful and watch where you’re going.  It is not only at big games like these that I have trouble getting around, but around campus as well. I’ll be at the bus stop and people try to swarm onto the bus to try to be the first one on, blocking my path and anyway for me to get on the bus. At other times, I’ll be watching where I’m going but someone might suddenly almost run into me because they are texting while they are walking.

I am also telling you this to protect YOUR safety as well. I may have been driving my scooter since I was 10 years old, but I make mistakes too from time to time. But I am aware of where I’m going and try to make sure I don’t run into anyone. That is the last thing I want is for me to run over someone’s foot because they were not watching where they were going.

So please, do me a favor. I’ll do my part and make sure to watch where I’m going. Now can you please do the same and watch where you’re going too?

 

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Bikes, Wheelchairs, & Motorized Scooters: What do they have in common?

by Anonymous

As a sophomore in the Duke community, I have come to embrace the reality that I am now a member of the distinctive Duke family. This will be my reality for the rest of my life, but within this lies a choice: to either realize the great opportunity I have to concern myself with the different matters individuals from this community bring to the table and to engage these matters from a position of gentleness and understanding or to simply passively identify as a Duke affiliate. I personally have found that there is great joy in seeking to understand the journey that each person is on and how this has shaped their perspective because I feel that in the process of listening to others with the intent of sincerely understanding, a person gains the capacity to be more considerate to everyone. All too often in both our own society and those around the world, damaging generalizations are constructed and perpetuated about individuals of any given group that cloud our ability to see those individuals who have placed their identity in these groups as individual people with unique identities. In my opinion, actions to counteract this habitual oversimplification of human identity in the Duke community would entail each person making the active choice to both consider matters that members our community face as our own personal matters. This concept of solidarity is powerful and I feel is something that we can reasonably strive for in the culture of Duke.

This summer while I was on campus for the first time with a bicycle, I had a unique experience that I found to be enlightening. Relying on my bike to get across the different campuses truly opened my eyes to how the seemingly minor ways that I had to adjust to the campus collectively amounted to a fairly major lifestyle modification. Whether this was not being able to ride the bus, having to take alternate routes that had ramps, having to pick up my bike if I happened to be walking with another person where there was no ramp, or adjusting the way that I walked with people to account for the object between me and the person I was walking with that served as a social barrier. This experience really transformed my outlook on the many facets of daily activity that would be changed if an individual had to actively seek an alternate path to get around campus as this likely wouldn’t align with the conventional path. Although in this experience there is an obvious divide between my experience and the experience of an individual who is physically impaired, from now on it is on my mind and heart that every point where I have to pick up my bike, an individual from this community would not be able to and would have to find their own way.

From this personal realization came this notion of solidarity and aspiring to personally identify with the matters of others in this community and collectively working towards realistic and ethical solutions. As a concerned student I avidly support the Duke Disability Alliance as the mission of this student group is empowering and enlightening for the student body as a whole and is a student organization that is focused on improving the accessibility issues present on our campus.

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Looking Back

- By Audrey Keller

When I broke my pelvis in June 2012 and was told I would have to spend three months in a wheelchair, including my first month of college, it sounded like forever. As I counted down the days until I could walk again, time seemed to be trickling by painfully slowly. All the while, though, I kept telling myself that in no time at all it would seem like the distant past. Two years later, that experience is well in my past, yet I don’t feel the need to suppress memories of that time as much as I thought I would.

I can’t say I enjoyed being disabled. I didn’t, but it wasn’t all bad. As I wrote about in my first blog post for the Duke Disability Alliance, I actually made a lot of friends in those first weeks of college, and people were incredibly accommodating. I actually think I met more people than I would have otherwise, because since I stood out so much, I was almost forced to be outgoing. Every once in a while, someone I’m talking to will say “Hey, aren’t you the girl that was in a wheelchair freshman year?” Two years ago, in the moment, I would have cringed at this question, but now I just smile and say yes. They don’t mean it in a bad way. I actually think most people who ask me this question remember it positively. Disability, I learned, doesn’t have to make someone lesser or remove them from society, and it doesn’t even have to be ignored or forgotten. Two years on, I am more accepting of having once been disabled than I was when I was disabled. Everyone likes a person who is self-confident, not a person who is embarrassed by themselves. This is a lesson that affects both how I carry myself today and how I perceive others living with disabilities.

dda

(Left) Treasurer Audrey Keller & (Right) President Cuquis Robledo of DDA at the Activities Fair this year.

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One-Way Ticket

By Karina Martinez-Romo

With all the construction that Duke is undergoing, most of us can’t help but complain about the long alternative routes getting to places, such as from Edens to the Bryan Center. I myself am guilty of doing this, but at the end of the day, I am not the one most affected by it. In fact, why should I or anyone else perfectly physically able feel the need to be accommodated? Those whose voices most matter in terms of accessibility are those with disabilities and it is our duty to spread cognizance about the daily issues they often endure and become instruments of change for this cause.

If you think the walk to the Bryan Center is long, think again. Try taking the route behind the chapel that is not only longer, but often secluded of people as well. Because of this, friends with disabilities frequently experience isolation from the rest of the student body. Additionally, with the winter season coming in, most of us choose the quickest and easiest path to Perkins- so we take the mulch path. The last thing you want is have to increase the time that you are in the cold, but for many of my friends they don’t have the luxury of option. The only path for them is yet again, often the longer and more isolated one. Sometimes, there isn’t even a path! Perhaps you are passionate about French or Italian. Next time you pass by the Languages building or are going in for a class, I want you to remember that for many on campus, they are deprived of the option of taking a course there due to the lack of accessibility.

ramp

bc

              These are only a few of the experiences many of my friends must endure. I will admit that for me, rainy days are the worst. I don’t like walking in the rain long distances. It can be frustrating when the weather seems to be burdening you. But what about those with motorized scooters or wheel chairs? Sometimes the Duke Vans may not arrive on time and consequently you are late to class. It has happened before that the motorized scooter my friend uses has suddenly stopped functioning on her in this kind of weather. It is not that simple for her to walk back to her dorm carrying all of her books, laptop and other belongings. She physically needs the aid of others to do things like these that others do effortlessly. For that reason, she often has to plan her days, her class schedules, and the activities she goes to around accessibly.

Another thing I will say is that yes, we often take things for granted. It’s a part of human nature. However, one thing that I’ve learned through my time at Duke, and simply put: stop taking things for granted. Take a moment and realize that what you assume to be the truth is not the case for everybody. Be sensible about the situations of others, such as friends with disabilities. Put yourself in their shoes. By becoming aware of the issues they go through, you can then advocate for change. Their circumstances can be like one-way tickets in the sense that they are often forced to literally go only one way.

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Beyond the Wheelchair: Invisible Disabilities

Often, when thinking about disabilities, it seems that everyone has a similar image in their head. Maybe the image is one of a close friend or a family member, but they all share something in common. The person is generally in a wheelchair or a motorized scooter. Even the logo for someone disabled is a person in a wheelchair, and that’s Duke Disability Alliance’s logo as well.

While its great to talk about improving wheelchair access and accessibility on campus, today I want to focus on a broader spectrum of disabilities. Disabilities are not simply physical. Disabilities can range from mental to sensory to developmental to cognitive to any combination of those and more. Many fall under the category of “invisible disabilities”, or disabilities that impair every day life that aren’t readily apparent to an outside observer. To give you a more concrete idea, here are a few of some of the chronic medical conditions that are invisible disabilities:

  • Autism
  • Inflammable bowl disease
  • Partial/Full deafness or blindness
  • Epilepsy
  • Narcolepsy
  • Diabetes
  • Chronic Pain

Here’s a larger, though still incomplete list. All of these conditions can affect a person’s quality of life, and they’re relatively common. One source estimates that 10% of Americans have a medical condition that could be considered an invisible disability if disabling.

Despite how common these invisible disabilities are, there is still very little support for people with these invisible disabilities. A recent study from the University of Maryland showed that those with more visible disabilities received significantly more accommodation. In the same study, those with disabilities such as a heart condition or muscle weakness were accused of stealing disabled passes or stated that they felt that they had to continually prove they were disabled.

I personally believe one of the best ways to understand what those with invisible disabilities go through is by listening to their stories. Therefore, I’d like to share with you the story of Grace. The full story is published here.

“I recently met Grace, a woman who had a traumatic brain injury when she was sixteen years old. She was in a car accident, an all too common occurrence. An accident occurs, the head hits a part of the car and internal damage to the brain results, ranging from mild to severe. Grace shows no outside cues of brain damage. …

In the course of our conversation, Grace told me of the years of difficulty she has encountered attending school and college. … She has required a lot of assistance to organize and work with information. Grace’s brain was damaged in the car accident. Her ability to hold information was altered by the impact.

The biggest difficulty that Grace has faced is not the effort it takes to organize information, however. It has been in convincing people that she had a problem at all. People look at Grace and assume she is fine and then react to her difficulty as if she is being lazy or choosing to be obstinate. Teachers’ judgments of Grace have been based on assumptions made from Grace’s physical appearance. … It was frustrating enough to have to struggle with the school work. Imagine having to struggle with negative judgments at the same time.”

More stories can be found here.

It’s clear that the way we think of disabilities has to change. The term “disability” does not simply signify physical disabilities and cannot be summarized in the image of a wheelchair. Instead, we need a new way of thinking about disability. I encourage you to talk to your friends and others in the community. Whether visibly disabled, non-visibly disabled, or not disabled at all, listen to their stories with an open mind. Finally, I ask you to consider how we can make Duke more accessible, not just in terms of ramps, but in creating an accepting and understanding campus.

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